Jan’s Story

My first symptoms were fatigue and poor neurological clarity in the late 1980’s, living in Massachusetts in a lovely colonial near the center of town. I had 4 children and worked part-time as a teacher of blind and visually impaired children.  I became disabled by chemical sensitivity and then electrically sensitivity in the 1990’s. My house had very high EMFs as a result of stray electricity coming into the house on the water pipes (from a neighbor’s poorly grounded electrical system.

I had to relocate to more rural areas to stop progress of the neurological impairment.  I lost my house, my career, my ability to do even the simple things like shop with my daughters a prom dress or for a first bra. I lost my ability to go to friend’s houses or church or stores and eventually had to move and leave my children behind. It was the hardest thing I ever had to do. I lost nearly everything in life that mattered to me.

I learned I had both mercury and lead toxicity, probably as a result of having mercury and other metals in my teeth and living in high EMFs. I learned that EMFs and microwaves mobilize mercury, and that having mixed metals in the mouth also mobilizes mercury.  I took chelators to remove the mercury and lead and got my life back, but developed migraine headaches from the chelators, probably because I had traces of mercury left in my teeth. There’s been a lot to learn.
-Jan Johnson, MA

EHS can be trigger for MCS, Chronic Fatigue, Fibromyalgia, etc.

The term electromagnetic hypersensitivity or electrosensitivity (EHS) referred to a clinical condition characterized by a complex array of symptoms typically occurring following exposure to electromagnetic fields (EMFs) even below recommended reference levels and is followed by remission through the complete isolation [1, 2]. The most frequently claimed trigger factors include video display units, radio, televisions, electrical installations, extremely low-frequency ranges of electromagnetic fields or radio-frequencies—including the so-called dirty electricity due to poor isolation of electric wires and telephonic lines, wireless devices, and wi-fi—fluorescent lamps and low-energy lights, appliances with motors, photocopiers, microwave transmitters, and high tension power lines (reviewed in [3, 4]). EHS is characterized by a broad range of nonspecific multiple-organ symptoms implying both acute and chronic inflammatory processes, involving mainly skin and nervous, respiratory, cardiovascular, musculoskeletal, and gastrointestinal systems, in most cases self-reported in absence of organic pathological signs except skin manifestations (reviewed in [2, 5]).

Clinical similarities and frequent comorbidity between EHS and the other medically unexplained multisystem conditions of environmental origin, like multiple chemical sensitivity (MCS), fibromyalgia (FM), chronic fatigue syndrome (CFS), sick building syndrome, Persian Gulf War veteran syndrome, and amalgam disease, to which EHS is often associated [6, 7], have induced many authors to hypothesize that these so-called idiopathic environmental intolerances (IEI), more extensively also defined as sensitivity-related illnesses (SRI) [8], may share common genetic and/or metabolic molecular determinants connected with an impaired capability to detoxify xenobiotics (for review, see [6, 9]).

See the website http://www.SAFEhelpsyou.org for more information on developing projects for referrals to areas that are safe for persons with EHS andMCS.

P. Levallois, “Hypersensitivity of human subjects to environmental electric and magnetic field exposure: a review of the literature,” Environmental Health Perspectives, vol. 110, supplement 4, pp. 613–618, 2002. View at Google Scholar · View at Scopus
S. J. Genuis and C. T. Lipp, “Electromagnetic hypersensitivity: fact or fiction?” Science of the Total Environment, vol. 414, pp. 103–112, 2012. View at Publisher · View at Google Scholar · View at Scopus
R. Richman, A. J. Munroe, and Y. Siddiqui, “A pilot neighborhood study towards establishing a benchmark for reducing electromagnetic field levels within single family residential dwellings,” Science of the Total Environment, vol. 466-467, pp. 625–634, 2014. View at Publisher · View at Google Scholar
World Health Organization, “Electromagnetic Fields,” 2011, http://www.who.int/peh-emf/en/.
H. Seitz, D. Stinner, T. Eikmann, C. Herr, and M. Röösli, “Electromagnetic hypersensitivity (EHS) and subjective health complaints associated with electromagnetic fields of mobile phone communication-a literature review published between 2000 and 2004,” Science of the Total Environment, vol. 349, no. 1–3, pp. 45–55, 2005. View at Publisher · View at Google Scholar · View at ScopusL.
L.Korkina, M. G. Scordo, I. Deeva, E. Cesareo, and C. de Luca, “The chemical defensive system in the pathobiology of idiopathic environment-associated diseases,” Current Drug Metabolism, vol. 10, no. 8, pp. 914–931, 2009. View at Publisher · View at Google Scholar · View at Scopus
E. Palmquist, A. S. Claeson, G. Neely, B. Stenberg, and S. Nordin, “Overlap in prevalence between various types of environmental intolerance,” International Journal of Hygiene and Environmental Health, 2013. View at Publisher · View at Google Scholar
S. J. Genuis, “Sensitivity-related illness: the escalating pandemic of allergy, food intolerance and chemical sensitivity,” Science of the Total Environment, vol. 408, no. 24, pp. 6047–6061, 2010. View at Publisher · View at Google Scholar · View at Scopus
C. de Luca, G. Scordo, E. Cesareo, D. Raskovic, G. Genovesi, and L. Korkina, “Idiopathic environmental intolerances (IEI): from molecular epidemiology to molecular medicine,” Indian Journal of Experimental Biology, vol. 48, no. 7, pp. 625–635, 2010. View at Google Scholar · View at Scopus